The Power of Charity; David's Story.
Here at Schofield, we understand the importance of charity.
In 2018 we raised over £1,000 each for Martin House and St. Michael’s hospices by tackling the Yorkshire 3 Peaks. Towards the end of the summer in 2020, we held a charity golf day and raised £7,500 to support Rob Burrow, a former Leeds Rhinos rugby league player who was diagnosed with Motor Neurone Disease (MND). Once we are able to, we plan to hold more charity events in the future.
One of our Analysts David Taylor understands the importance of raising money and awareness for charity more than anyone. His son Edward (who is now 5) was diagnosed with Duchenne Muscular Dystrophy aged 2. There are around 2,500 people in the UK and 300,000 worldwide who have Duchenne.
David shares his experience.
“ In May 2018 I received the devastating news from a consultant in Leeds General Infirmary that my son has Duchenne Muscular Dystrophy. Simply put, it’s a muscle wasting disease caused by a mutation in the dystrophin gene. Boys require a wheelchair from the age of 5 or 6 and on average have a shorter life expectancy (between 30-40 years of age).
With great help from friends and family, as well as forming networks with other parents of children with Duchenne, I was able to move forward.
I now have a drive for raising money for Edward Steam Team, which is a Family Fund I have set up. All donations made here go directly towards Edward’s benefit. At the same time I want to raise as much money and awareness as possible for Duchenne UK, to help them find a cure for this horrible disease!
If anyone would like more information or to contribute, please follow the link below:
Despite the situation, I wanted to also share some of the positives.
· It has made me realise how short life is and it has to be lived today, not tomorrow! I’m glad I can now do more fun things with Edward again as Coronavirus restrictions continue to lift, whether that be in a theme park, on a crazy golf course or in a play area.
· I now have greater focus in life. I work hard each day at work to be able to provide Edward with the support he needs in life.
· I have made great connections. There’s always somebody that is probably going through a similar experience that you can ask for advice.
· I now feel fitter than ever! I set myself the challenge of doing the Yorkshire marathon in 2019. However, through the Coronavirus pandemic I have found walking much more appealing! In October 2021 I hope to tackle another marathon in support of Edward Steam Team and Duchenne UK.
· Financial planning is so important! In addition to Edward’s diagnosis I also went through the process of divorce. Two dramatic changes to my life that I never wanted. My need for financial planning changed dramatically. It made me really focus on my finances and put in place strategies to help me build for the future! ”